Management
Rumyantsev Alexander Grigorievich
President of the Orphan Consortium of CIS States
- President of the Dmitry Rogachev National Medical Research Center for Children's Hematology, Oncology and Immunology of the Russian Ministry of Health, Chairman of the Board of the National Association of Experts on Rare Diseases (NAERES),
- Doctor of Medical Sciences.
- Professor
- Academician of the Russian Academy of Sciences
Aripova Tamara Uktamovna
Vice President of the Orphan Consortium
- Director of the Institute of Human Immunology and Genomics of the Academy of Sciences of the Republic of Uzbekistan
- Academician of Sciences of the Republic of Uzbekistan
- Doctor of Medical Sciences
- Professor
Musina Nuria Zagitovna
Executive Director of the CIS Orphan Consortium
- Candidate of Pharmaceutical Sciences
- Associate Professor
