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Stuk Yulia Alexandrovna, Secretary of the Consortium
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II Forum of CIS countries on orphan diseases 26 June 2025 - 27 June 2025 II Forum of CIS countries on orphan diseases CIS FORUM on Orphan Diseases 21 June 2024 CIS FORUM on Orphan Diseases



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China updates regulations for implementing the Medicines Regulation Law Published 18 February 2026 China updates regulations for implementing the Medicines Regulation Law The US has extended the Priority Review Voucher (PRV) program for rare pediatric diseases. Published 17 February 2026 The US has extended the Priority Review Voucher (PRV) program for rare pediatric diseases. Sechenov University discussed the possibilities of innovative treatment methods for children with severe and rare diseases. Published 16 February 2026 Sechenov University discussed the possibilities of innovative treatment methods for children with severe and rare diseases.
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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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