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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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Orphan centers of the CIS: Republic of Uzbekistan Published 25 July 2025 Orphan centers of the CIS: Republic of Uzbekistan Orphan Center of Morozov Hospital: 10 years of systematic assistance to children with rare diseases in Moscow Published 24 July 2025 Orphan Center of Morozov Hospital: 10 years of systematic assistance to children with rare diseases in Moscow Russia: Orphan Center of Moscow Region Published 23 July 2025 Russia: Orphan Center of Moscow Region Kazakhstan is the first CIS country to establish a national coordination center for rare diseases Published 22 July 2025 Kazakhstan is the first CIS country to establish a national coordination center for rare diseases Orphan centers are a key element in the system of care for patients with rare diseases Published 21 July 2025 Orphan centers are a key element in the system of care for patients with rare diseases

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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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