Management
Rumyantsev Alexander Grigorievich
President of the Orphan Consortium of CIS States
- President of the Dmitry Rogachev National Medical Research Center for Children's Hematology, Oncology and Immunology of the Russian Ministry of Health, Chairman of the Board of the National Association of Experts on Rare Diseases (NAERES),
- Doctor of Medical Sciences.
- Professor
- Academician of the Russian Academy of Sciences
Musina Nuriya Zagitovna
Executive Director of the CIS Orphan Consortium
- Candidate of Pharmaceutical Sciences
- Associate Professor
Zaure Dmitrievna Dushimova
Vice President of the Orphan Consortium
Candidate of Medical Sciences, Head of the Centre for Coordination of Orphan Diseases in Adults at the "Research Institute of Cardiology and Internal Diseases" JSC (Republic of Kazakhstan), Chief Freelance Specialist on Orphan Diseases in Adults of the Ministry of Healthcare of the Republic of Kazakhstan.
