The CIS Orphan Consortium implements projects aimed at solving key problems related to improving diagnostics, treatment and organization of medical care for patients with rare diseases.
We strive to ensure cooperation and exchange of information between the Consortium members, as well as to raise awareness of the society and the medical community about the problems of rare diseases.
Our efforts are focused on collecting and analyzing data from real clinical practice, promoting the development of innovative diagnostic and treatment technologies, and creating information platforms that provide access to up-to-date data for specialists and patient organizations.
This section contains information about the current and planned projects of the Consortium. If you are interested in participating or supporting our initiatives, you can contact us to discuss possible cooperation.
