+7 903 663-25-20
You can contact us
+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
Collection and analysis of data from real clinical practice

Collection and analysis of data from real clinical practice

News
FDA relaxes requirements for manufacturing cell and gene therapies in clinical development Published 14 January 2026 FDA relaxes requirements for manufacturing cell and gene therapies in clinical development Changes to the list of orphan diseases and drugs have come into force in Kazakhstan Published 14 January 2026 Changes to the list of orphan diseases and drugs have come into force in Kazakhstan HAS (France) analyzed the use of real-world clinical practice data in clinical and economic studies of innovative technologies Published 14 January 2026 HAS (France) analyzed the use of real-world clinical practice data in clinical and economic studies of innovative technologies
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Consortium members
Republic of Azerbaijan
2 organizations
Republic of Armenia
2 organizations
Republic of Belarus
1 organization
Kyrgyz Republic
5 organizations
Republic of Kazakhstan
5 organizations
Russian Federation
8 organizations
Republic of Uzbekistan
7 organizations
Republic of Tajikistan
1 organization
All members
Events: CIS Orphan Forum and webinars

A project for cooperative research and collection of real-world clinical practice data in the treatment of rare diseases. A project for cooperative research and collection of real-world clinical practice data in the treatment of rare diseases. Creation of the information portal of the CIS Orphan Cosorium Creation of the information portal of the CIS Orphan Cosorium
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You can contact us

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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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Русский English
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