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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
Webinars

Webinars

Webinar "MCDA for Policy Making on Orphan Medicinal Products (OMPs) 26 February 2026 Webinar "MCDA for Policy Making on Orphan Medicinal Products (OMPs) Webinar "Management of Hemophilia as a Rare Disease: Models for Accessing Innovative Therapies" Türkiye 02 December 2025 Webinar "Management of Hemophilia as a Rare Disease: Models for Accessing Innovative Therapies" Türkiye Webinar "Multi-Criteria Decision Analysis (MCDA) in Rare Diseases" 22 October 2025 Webinar "Multi-Criteria Decision Analysis (MCDA) in Rare Diseases" Webinar "Real world evidence and real world data (RWE/RWD) in rare diseases" 18 April 2025 Webinar "Real world evidence and real world data (RWE/RWD) in rare diseases"



News
China updates regulations for implementing the Medicines Regulation Law Published 18 February 2026 China updates regulations for implementing the Medicines Regulation Law The US has extended the Priority Review Voucher (PRV) program for rare pediatric diseases. Published 17 February 2026 The US has extended the Priority Review Voucher (PRV) program for rare pediatric diseases. Sechenov University discussed the possibilities of innovative treatment methods for children with severe and rare diseases. Published 16 February 2026 Sechenov University discussed the possibilities of innovative treatment methods for children with severe and rare diseases.
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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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