+7 903 663-25-20
You can contact us
+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
Events

Events

All Completed Planned
Webinar "Management of Hemophilia as a Rare Disease: Models for Accessing Innovative Therapies" Türkiye 02 December 2025 Webinar "Management of Hemophilia as a Rare Disease: Models for Accessing Innovative Therapies" Türkiye Webinar "Multi-Criteria Decision Analysis (MCDA) in Rare Diseases" 22 October 2025 Webinar "Multi-Criteria Decision Analysis (MCDA) in Rare Diseases" Webinar "Real world evidence and real world data (RWE/RWD) in rare diseases" 18 April 2025 Webinar "Real world evidence and real world data (RWE/RWD) in rare diseases" II Forum of CIS countries on orphan diseases 26 June 2025 - 27 June 2025 II Forum of CIS countries on orphan diseases CIS FORUM on Orphan Diseases 21 June 2024 CIS FORUM on Orphan Diseases



News
FDA relaxes requirements for manufacturing cell and gene therapies in clinical development Published 14 January 2026 FDA relaxes requirements for manufacturing cell and gene therapies in clinical development Changes to the list of orphan diseases and drugs have come into force in Kazakhstan Published 14 January 2026 Changes to the list of orphan diseases and drugs have come into force in Kazakhstan HAS (France) analyzed the use of real-world clinical practice data in clinical and economic studies of innovative technologies Published 14 January 2026 HAS (France) analyzed the use of real-world clinical practice data in clinical and economic studies of innovative technologies
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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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