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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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III CIS Forum on Rare Diseases 25 May 2026 - 26 May 2026 III CIS Forum on Rare Diseases II Forum of CIS countries on orphan diseases 26 June 2025 - 27 June 2025 II Forum of CIS countries on orphan diseases CIS FORUM on Orphan Diseases 21 June 2024 CIS FORUM on Orphan Diseases



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Russia has updated its list of rare diseases Published 11 March 2026 Russia has updated its list of rare diseases The CIS Orphan Consortium has joined Rare Diseases International. Published 09 March 2026 The CIS Orphan Consortium has joined Rare Diseases International. FDA launches new mechanism to expedite development of individualized targeted therapies for ultra-rare diseases Published 25 February 2026 FDA launches new mechanism to expedite development of individualized targeted therapies for ultra-rare diseases
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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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