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Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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WHO Report at the II CIS Orphan Forum | Moscow, June 26, 2025 Published 02 July 2025 WHO Report at the II CIS Orphan Forum | Moscow, June 26, 2025 WHO presents strategy for transforming paediatric drug system Published 02 July 2025 WHO presents strategy for transforming paediatric drug system WHO presents annual World Health Statistics 2025 report: what does it say about global health priorities? Published 02 July 2025 WHO presents annual World Health Statistics 2025 report: what does it say about global health priorities? Historic step in the world of rare diseases: WHO adopts first resolution Published 02 July 2025 Historic step in the world of rare diseases: WHO adopts first resolution WHO Glossary: ​​A Key Step for Health Data Standardization Published 04 February 2025 WHO Glossary: ​​A Key Step for Health Data Standardization

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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
Полное наименование: Ассоциация «Национальная ассоциация экспертов по редким заболеваниям»
ОГРН: 1227700431551
ИНН: 9726017459
Адрес: 117556, Г.МОСКВА, ВН.ТЕР.Г. МУНИЦИПАЛЬНЫЙ ОКРУГ НАГОРНЫЙ, Б-Р ЧОНГАРСКИЙ, Д. 1, К. 2, ЭТАЖ/ПОМЕЩ. 1/61, КОМ./ОФИС 3/3
e-mail: y.stuk@naerez.ru

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