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Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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Kazakhstan is the first CIS country to establish a national coordination center for rare diseases Published 22 July 2025 Kazakhstan is the first CIS country to establish a national coordination center for rare diseases Orphan centers are a key element in the system of care for patients with rare diseases Published 21 July 2025 Orphan centers are a key element in the system of care for patients with rare diseases Integration of care for rare diseases: multidisciplinarity, continuity, coordination II CIS Orphan Forum | Moscow, June 27, 2025 Published 15 July 2025 Integration of care for rare diseases: multidisciplinarity, continuity, coordination II CIS Orphan Forum | Moscow, June 27, 2025 Experts from Kazakhstan and Azerbaijan spoke at the thematic session “Blood coagulation disorders” of the II CIS Orphan Forum Published 14 July 2025 Experts from Kazakhstan and Azerbaijan spoke at the thematic session “Blood coagulation disorders” of the II CIS Orphan Forum Kazakhstan's experience: a course towards systemic transformation of care for patients with orphan diseases Published 02 July 2025 Kazakhstan's experience: a course towards systemic transformation of care for patients with orphan diseases Session "Blood Coagulation Disorders" at the II CIS Orphan Forum | Moscow, June 27, 2025 Published 30 June 2025 Session "Blood Coagulation Disorders" at the II CIS Orphan Forum | Moscow, June 27, 2025

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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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