ROO "Association of Medical Geneticists"
The Republican public association "Association of Medical Geneticists" is one of the oldest professional associations of doctors in Kazakhstan. In 2021, the association received the status of Republican and at that time already had 7 branches in different regions of Kazakhstan.
The Association sets itself very important problems, such as legislative regulation and development of the genetic service, as well as related systems for the diagnosis and treatment of rare diseases and, of course, issues of payment and therapy within the framework of compulsory medical insurance.
President of the Association of Medical Geneticists of Kazakhstan. - Svyatova Gulnara Salavatovna - MD, Professor
Resolution of the III CIS Orphan Forum: Establishment of the BRICS Orphan Consortium and Development of International Cooperation in the Field of Rare Diseases
Following the Forum on May 25–26, 2026, a Resolution was adopted, agreed upon with the participants of the CIS Orphan Consortium. The document consolidates the key proposals developed over two days of work by experts from 21 countries — members of the Commonwealth of Independent States (CIS), BRICS, and partner states.
The creation of the BRICS Orphan Consortium was announced at the III CIS Orphan Forum
The III CIS Orphan Forum has come to an end: the Commonwealth countries are entering into cooperation with BRICS