On the Eve of International Rare Disease Day: Opinion of Experts from the CIS Orphan Consortium
What steps are needed to improve the situation with the diagnosis and treatment of rare diseases?
This topic remains relevant for patients, their families, doctors and the entire medical community. Early diagnosis, access to therapy, improvement of the health care system - all this requires an integrated approach and cooperation of specialists in different countries.
In the coming days, we will publish the opinions of the leading experts of the consortium - doctors, geneticists, healthcare organizers, representatives of patient organizations and regulators. They will tell you what measures need to be taken to ensure that patients with rare diseases can receive timely and high-quality care.
Follow our publications and share your opinion in the comments! What changes, in your opinion, will help improve the diagnosis and treatment of rare diseases?
