+7 903 663-25-20
You can contact us
+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
ALE "Association for Assistance to Patients with Orphan Diseases in the Republic of Kazakhstan".

ALE "Association for Assistance to Patients with Orphan Diseases in the Republic of Kazakhstan".

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News
Russia has updated its list of rare diseases Published 11 March 2026 Russia has updated its list of rare diseases The CIS Orphan Consortium has joined Rare Diseases International. Published 09 March 2026 The CIS Orphan Consortium has joined Rare Diseases International. FDA launches new mechanism to expedite development of individualized targeted therapies for ultra-rare diseases Published 25 February 2026 FDA launches new mechanism to expedite development of individualized targeted therapies for ultra-rare diseases
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+7 903 663-25-20
+7 926 840-02-03
117556, Moscow, Chongarsky Boulevard, 1/2, office 3/3
Musina Nuria Zagitovna, executive director
Stuk Yulia Alexandrovna, Secretary of the Consortium
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