Orphan Consortium Expands Horizons: New Partners in the CIS
The CIS Orphan Consortium (https://t.me/occ_cis) continues to strengthen international cooperation, uniting leading scientific and medical organizations to improve diagnostics, treatment and support for patients with rare diseases.
We are pleased to welcome new members from:
- Republic of Uzbekistan
- Kyrgyz Republic
- Republic of Armenia
New members of the Consortium:
Tashkent Pediatric Medical Institute (🇺🇿 Uzbekistan)
The largest center for training pediatricians, actively studying rare genetic and hereditary diseases in children. The Institute is engaged in the development of clinical guidelines and the implementation of modern diagnostic and treatment methods.
Representative: Dilorom Ilhamovna Akhmedova
- Chief pediatrician of Uzbekistan
- Professor, Head of the Department of Pediatrics No. 2
- Expert in the field of improving medical care for children with rare diseases and developing national clinical protocols
Kyrgyz-Russian Slavic University named after B.N. Yeltsin (🇰🇬 Kyrgyzstan)
One of the leading universities in the country, combining Russian and Kyrgyz educational traditions, engaged in medical genetics, clinical pharmacology and personalized medicine.
Representative: Aida Ashiralievna Zurdinova
- Head of the Department of Basic and Clinical Pharmacology
- Chief Clinical Pharmacologist of the Ministry of Health of Kyrgyzstan
- Specialist in the field of personalized pharmacotherapy and orphan drugs
Armenian Association of Evidence-Based Medicine Specialists (🇦🇲 Armenia)
A professional association promoting the principles of evidence-based medicine in the country, participating in the development of clinical guidelines and working to improve the effectiveness of treatment of rare diseases.
Representative: Albert Mushegovich Martirosyan
- President of the Association
- Expert in the analysis of real clinical practice data and the development of strategies to increase the availability of innovative therapy and the integration of evidence-based medicine methods into the healthcare system.
International Center for Molecular Allergology (🇺🇿 Uzbekistan)
Leading research center studying the molecular mechanisms of allergic and immunopathological diseases, developing personalized methods for diagnosing and treating rare immune pathologies.
Representative: Gulnara Suleimanovna Dzhambekova
- Doctor of Medical Sciences
- Expert in the field of clinical immunology and allergology
- studies genetic factors of allergic diseases and develops biomarkers for personalized diagnostics
The participation of new partners will strengthen international scientific research, clinical practice and the availability of orphan drugs for patients.
