News
WHO has released guidelines on best practices for conducting clinical trials: what trials should look like today
FDA approves first gene replacement therapy for SMA available to all ages
Uzbekistan: New state program to help children with orphan diseases for 2026–2030
The CIS Orphan Consortium has a new member!
CIS Orphan Consortium Expands Partnership!
The CIS Orphan Consortium has a new member!
The Association of Pediatricians of Azerbaijan joined the CIS Orphan Consortium!
CIS Orphan Consortium welcomes new collaboration!
Orphan Consortium Expands Horizons: New Partners in the CIS
New Alliance Against Rare Diseases: CIS Creates Orphan Consortium
On June 21, in Moscow, as part of the First CIS Forum on Orphan Diseases, leading experts from Armenia, Belarus, Kazakhstan, Uzbekistan and the Kyrgyz Republic gathered to discuss current issues in the treatment of rare diseases.
Orphan Consortium of CIS States Headed by Alexander Rumyantsev
The CIS Orphan Consortium has been created in Uzbekistan. It is headed by Alexander Rumyantsev, President of the Dmitry Rogachev National Medical Center for Children's Hematology, Oncology and Immunology.