Uzbekistan: New state program to help children with orphan diseases for 2026–2030
Uzbekistan: New state program to assist children with orphan diseases for 2026–2030
In November 2025, President of Uzbekistan Shavkat Mirziyoyev reviewed a comprehensive program to develop assistance for children with rare (orphan) and hereditary-genetic diseases and signed a decision approving it.
Key elements of the program:
-
State support now extends to 10 orphan and hereditary-genetic diseases (previously – 5);
-
The age limit for receiving support has been increased from 18 to 21 years;
-
It is planned to allocate 961 billion soums for the program's implementation from 2026–2030;
-
Free provision of diagnostics, medications, and specialized therapeutic nutrition for children will be maintained, funded from the state budget.
List of diseases included in the program:
cystic fibrosis, thalassemia, hemophilia, juvenile rheumatoid arthritis, epidermolysis bullosa, primary immunodeficiency, Duchenne pyelonephritis, subacute sclerosing panencephalitis, Gaucher disease, Pompe disease.
Development of the pharmaceutical industry and access to medicines:
-
Local production is expanding (205 products at 35 companies, export to 55 countries);
-
GMP, GDP, and GPP standards have been implemented;
-
Starting January 1, 2026, prices for approximately 2,600 prescription drugs are planned to be reduced by 40–50% through the introduction of reference pricing and electronic government procurement.
Official source (Uzbek) — website of the President of the Republic of Uzbekistan (https://president.uz/oz/lists/view/8618)
