You can contact us

Based on the results of the webinar “Real-World Clinical Practice Data (RWE/RWD) in Rare Diseases”, a draft Resolution has been prepared!

Published 29 April 2025
Last update 29 September 2025
671
Source

Colleagues, following the results of the webinar "Real-World Clinical Practice Data (RWE/RWD) in Rare Diseases", a draft Resolution has been prepared!

We invite you to read the text and send your comments and suggestions before April 30.

It is important for us to take into account the opinions of all interested parties in order to form a strong and meaningful position.

Thank you for your participation and support!

For contact: Info@orphan-cis.net

Based on the results of the webinar “Real-World Clinical Practice Data (RWE/RWD) in Rare Diseases”, a draft Resolution has been prepared!
Select language
Your message has been sent successfully!
We will contact you shortly. If you have an urgent question, please call us at 8 903 663 25 20 or write to us at musinan@orphan-cis.net.

Your opinion is important to us!