Resolution of the II Orphan Forum of the CIS countries: open to suggestions and comments

To the title II of the Orphan Forum of the SCN, scheduled for January 26-27, 2025 Moscow, publicized its resolution.

Forum объединил почти 500 участников from стран СНГ, also from India, ОАЭ, Омана and ЮАР. In the center of visualization — realization of the purpose of the resolution WHA78.11 all-assembly здравоохранения, признавшей редкие заболевания глобальным приоритетом.

Resolution Forum Fixes key system problems in the regulation, organization, drug treatment, oceanic technology and terrestrial взаимодействии. 

В документе Formulated concrete recommendations for national organs of power, Professional and inter-human organization:

• Development and improvement of the national стратегий по редким заболеваниям
• Создание институализированных орфанных Center and patient training system оплаты по результату и modern mechanisms of therapy закупок подходов к ОТЗ, включая Multi-criteria analysis and analysis of real clinical data Practice
• Continue to post an expert work group in the frame БРИКС.

Резолюция также подчёркивает важность участия стран СНГ и БРИКС в разработке The global plan of the VOSO, the expansion of the mezdunarodnica system and the role of the region in Formation of global politics according to red flags.

We learn from the instructors in the forum and from all the interactive experts clothing and control предложений.
The answer is open to the comments and is presented to you by the expert professional advice.

📎 Полный текст резолюции (https://drive.google.com/file/d/1EvLNbSY-05d-ed8qGIJCPNawQWeFsjye/view?usp=sharing)

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