News
Orphan centers of the CIS: Republic of Uzbekistan
Orphan Center of Morozov Hospital: 10 years of systematic assistance to children with rare diseases in Moscow
Russia: Orphan Center of Moscow Region
Kazakhstan is the first CIS country to establish a national coordination center for rare diseases
Orphan centers are a key element in the system of care for patients with rare diseases
Integration of aid: experience of the Republics of Armenia, Belarus and the Kyrgyz Republic II CIS Orphan Forum | Moscow, June 27, 2025
Integration of care for rare diseases: multidisciplinarity, continuity, coordination II CIS Orphan Forum | Moscow, June 27, 2025
Rare tumors in children: a challenge requiring a systematic approach
SMA: experience of the Republic of Armenia, Belarus and Uzbekistan |II CIS Orphan Forum|Moscow, June 27, 2025
SMA: Russia's path from emergency response to a systemic model of care
Results of the session "Legal and regulatory space for rare diseases: challenges, approaches, prospects" II CIS Orphan Forum | Moscow, June 27, 2025
Results of the session "Blood coagulation disorders" II CIS Orphan Forum | Moscow, June 27, 2025
At the thematic session “Blood Coagulation Disorders” of the II CIS Orphan Forum, experts from Tajikistan and Belarus presented data on the development of systems for helping patients with coagulopathies.
Experts from Kazakhstan and Azerbaijan spoke at the thematic session “Blood coagulation disorders” of the II CIS Orphan Forum
Rare Diseases - A Shared Responsibility: An Interview with Prasanna Kumar Shirol
Exclusive interview with Professor Ayman El-Khattab |II Orphan CIS Forum, Moscow
Resolution of the II Orphan Forum of the CIS countries: open to suggestions and comments
WHO Report at the II CIS Orphan Forum | Moscow, June 26, 2025
The Future of Orphan Therapy: Regulation, Technology, Accessibility
Kazakhstan's experience: a course towards systemic transformation of care for patients with orphan diseases
Opening of the II CIS Orphan Forum