Exclusive interview with Professor Ayman El-Khattab |II Orphan CIS Forum, Moscow

As part of the Forum, we spoke with one of the leading experts in the MENA region on rare diseases —

Prof. Ayman El-Khattab, Director of the Orphan Center at Burjeel Medical City (UAE), President of the MENA Congress for Rare Diseases. 

In a conversation with the executive director of the CIS Orphan Consortium, Nuriya Musina, he shared current challenges, innovative approaches and the potential for cooperation between the CIS, BRICS and Middle East countries.

In the interview, the professor talks about:

• why patient registries, genetic diagnostics and access to therapy remain key tasks;
• how clinical trials and local production in the UAE help overcome access barriers;
• why each country needs its own center for rare diseases and how to build a systemic work;
• how reimbursement of therapy is organized in the UAE and what solutions work for foreign patients;
• why cooperation in R&D and distribution of priority nosologies between countries is the path to sustainable solutions.

Don't miss it - an inspiring look at global cooperation in orphan medicine!

You can watch the interview at the link