News
Biomedical Collaboration: A Visit to Beijing's Daxing Science and Technology Park
Visit of NAERES representatives to the Beijing Orphan Center
A cooperation agreement was signed between the National Medical Chamber of Russia and the Chinese Medical Association.
Ireland approves National Rare Disease Strategy 2025–2030
Patient-oriented oncology: the role of ePRO systems
CAR-T Therapy: What Real-World Clinical Practice Data Shows
The EU launches the European Health Data Space — common rules and digital medicine without borders
FDA Proposes New Path to Approval of Therapies for Ultra-Rare Diseases: Relying on Mechanism of Action
EMA publishes third annual report on the use of Real-World Evidence in the European Union (February 2024 – February 2025)
Patient-centric drug development: from needs identification to registration and inclusion in the reimbursement system
Rare Diseases - A Shared Responsibility: An Interview with Prasanna Kumar Shirol
Exclusive interview with Professor Ayman El-Khattab |II Orphan CIS Forum, Moscow
Definitions of Rare Diseases and Orphan Drugs: Challenges to Harmonization and Paths to Legal Convergence in the CIS
NICE updates approach to orphan technologies
WHO presents annual World Health Statistics 2025 report: what does it say about global health priorities?
Historic step in the world of rare diseases: WHO adopts first resolution
Living with a rare disease is more than just a medical problem; it is a whole complex of challenges that people face every day.
The recent Rare Barometer report, produced by EURORDIS in April 2025, reveals the reality of life for those living with such diseases in Europe and beyond.
WHO Glossary: A Key Step for Health Data Standardization
Orphan Drugs 2024: A Review of Progress in the US and Europe
New era in health technology assessment in the EU: Joint Clinical Assessment Regulation comes into force
New data on the prevalence of rare diseases