Rare Diseases - A Shared Responsibility: An Interview with Prasanna Kumar Shirol
Published 12 July 2025
Last update 29 September 2025
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Prasanna Kumar Shirol is the co-founder and executive director of the Organization for Rare Diseases of India (ORDI)
In an exclusive interview at the II CIS Orphan Forum, he said:
- how the national treatment financing system works in India
- why crowdfunding has become part of the model
- how the BRICS countries can join forces to make treatment more accessible
- what Indian pharmaceutical production can give to the CIS countries
“Instead of everyone working on everything, the BRICS countries can divide rare nosologies - and together we will move faster and more effectively,” Shirol believes.
Watch the interview - this is an important voice of international partnership.
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